➵ Slow Dancing with a Stranger: Lost and Found in the Age of Alzheimer's Read ➼ Author Meryl Comer – Reliableradio.co.uk

Slow Dancing with a Stranger: Lost and Found in the Age of Alzheimer's Very interesting book I had a hard time putting it down However, I m not sure that I believe all of the author s heroics The book seems to be very self serving I d love to hear from one of the nurses or the step son to find out if the author is as wonderful as she portrays herself The author mentions maybe one time when she was less than saintly to her husband If he was so dangerous and uncontrollable, a lot of this account just isn t believable The author is also fortunate to have the in Very interesting book I had a hard time putting it down However, I m not sure that I believe all of the author s heroics The book seems to be very self serving I d love to hear from one of the nurses or the step son to find out if the author is as wonderful as she portrays herself The author mentions maybe one time when she was less than saintly to her husband If he was so dangerous and uncontrollable, a lot of this account just isn t believable The author is also fortunate to have the income to hire shifts of full time nurses to help her out, so that her care giving is not 24 7 Maybe I would betrusting of her account if someone else praised her, other than herself I also felt that she did not help me to know her husband and mother as real people, except for their mostly bad qualities A New York Times BestsellerEmmy Award Winning Broadcast Journalist And Leading Alzheimer S Advocate Meryl Comer S Slow Dancing With A Stranger Is A Profoundly Personal, Unflinching Account Of Her Husband S Battle With Alzheimer S Disease That Serves As A Much Needed Wake Up Call To Better Understand And Address A Progressive And Deadly AfflictionWhen Meryl Comer S Husband Harvey Gralnick Was Diagnosed With Early Onset Alzheimer S Disease In , She Watched As The Man Who Headed Hematology And Oncology Research At The National Institutes Of Health Started To Misplace Important Documents And Forget Clinical Details That Had Once Been Cataloged Encyclopedically In His Mind With Harrowing Honesty, She Brings Readers Face To Face With This Devastating Condition And Its Effects On Its Victims And Those Who Care For Them Detailing The Daily Realities And Overwhelming Responsibilities Of Caregiving, Comer Sheds Intensive Light On This National Health Crisis, Using Her Personal Experiences The Mistakes And The Breakthroughs To Put A Face To A Misunderstood Disease, While Revealing The Facts Everyone Needs To KnowPragmatic And Relentless, Meryl Has Dedicated Herself To Fighting Alzheimer S And Raising Public Awareness Nothing I Do Is Really About Me It S All About Making Sure No One Ends Up Like Me, She Writes Deeply Personal And Illuminating, Slow Dancing With A Stranger Offers Insight And Guidance For Navigating Alzheimer S Challenges It Is Also An Urgent Call To Action For Intensive Research And A Warning That We Must Prepare For The Future, Instead Of Being Controlled By A Disease And A Healthcare System Unable To Fight It I have been reading several dementia memoirs in the last two years, and Comer distinguishes herself by taking ablunt and pragmatic approach to the topic She s an award winning journalist, so a just the facts approach seems to make sense I ve read several dementia memoirs by people trained in the field of humanities, and they interject a lyric, poetic, metaphoric and philosophical quality Or at least, they plumb the depths of how Alzheimer s alters relationships and identity Not so wi I have been reading several dementia memoirs in the last two years, and Comer distinguishes herself by taking ablunt and pragmatic approach to the topic She s an award winning journalist, so a just the facts approach seems to make sense I ve read several dementia memoirs by people trained in the field of humanities, and they interject a lyric, poetic, metaphoric and philosophical quality Or at least, they plumb the depths of how Alzheimer s alters relationships and identity Not so with Comer She takes her husband s and then later her mother s Alzheimer s and puts it in a chair in an otherwise empty room with a naked lightbulb harshly shining a light on the issue Alzheimer s is brutal, messy, chaotic and painful for everyone involved She starts by describing her husband, Harvey Gralnick, a research scientist at NIH He is intelligent, driven, willful and sophisticated His behavior and memory become altered, and it takes her a very long time to get an accurate diagnosis of early onset Alzheimer s Disease in part because of lack of awareness of the disease in early oneset, in part because he is so smart that people resist such a diagnosis, and in part because other physicians out of professional courtesy prefer to discount Comer as an interfering spouse instead of validating her as a family informant I was INFURIATED at that passage featuring the dismissive physician Once Gralnick s work performance disintegrates to the point of making a public spectacle, people finally believe it s not just stress But even with an accurate diagnosis after two years of seeking one , there are very few options for addressing his problems Gralnick doesn t just have memory problems his behavior is a huge problem I have volunteered in a skilled nursing facility that includes residents with dementia And Gralnick s behavior is on the most difficult extreme of the spectrum He s uninhibited and aggressive to the point of physically lashing out at others Comer has trouble finding a facility that will accept him, and getting in home help is a challenge as well Anti psychotic medicine and sedatives bring a host of undesirable side effects It was heartbreaking to watch Comer explore multiple options only to remain just about where she started Comer s account clearly shows the hopelessness of current Alzheimer s treatment as in, THERE IS NO TREATMENT So much time, so much energy, so much money and no results Comer is now working with a nonprofit organization Geoffrey Beene Foundation Alzheimer s Initiative that s seeking a cure for Alzheimer s Disease, and her book certainly serves as a compelling case study for why it s vital to find a cure I had very conflicted emotions as I read this book As a caregiver to my mother who suffers from what is thought to be vascular dementia, I was able to relate to the way this disease had taken over her husband s personality and took away the relationship that used to be between the two of them I was in awe of the way she dropped her professional life in order to care for her husband at home I totally related to the poor treatment she experienced at the outside facilities I also related to the I had very conflicted emotions as I read this book As a caregiver to my mother who suffers from what is thought to be vascular dementia, I was able to relate to the way this disease had taken over her husband s personality and took away the relationship that used to be between the two of them I was in awe of the way she dropped her professional life in order to care for her husband at home I totally related to the poor treatment she experienced at the outside facilities I also related to the enormous expense this disease infringed upon them Where I started to wane in sympathy for her heroics was when she told of how she took on the role of CEO and such of the Beene Foundation pulling together fundraisers and concerts Now, having been involved in fundraising during my own lifetime, I find the story start to move into a fairytale stage Caregiving 12 hours a day and pulling together fundraisers seems outside of human capability She definitely gave the impression she was totally involved in her husbands day to day careto the point of total exhaustion However, she also had a team of four or five nurses and care takers It just didn t add up.While this was an insight into the life of an Alzheimer s patient, it wasa book about how courageous the author was This tainted the story for me Ms Comer makes some important points Caregivers must be listened to and cared for early diagnosis is critical yet difficult to achieve and the Alzheimer s Association does us no service when the disease is portrayed in thirty second television ads showing a benign image of a little old lady with slowly fading, sepia toned memories I am grateful the author has told an unvarnished account of caregiving for a husband with early onset dementia I am concerned that the author refers to the dise Ms Comer makes some important points Caregivers must be listened to and cared for early diagnosis is critical yet difficult to achieve and the Alzheimer s Association does us no service when the disease is portrayed in thirty second television ads showing a benign image of a little old lady with slowly fading, sepia toned memories I am grateful the author has told an unvarnished account of caregiving for a husband with early onset dementia I am concerned that the author refers to the disease as Alzheimer s, without mentioning any of the other possible dementias at a time when true diagnosis could only have been made upon autopsy There are other dementias and they need to be included in the larger discussion.The author s husband has survived for 20 years with this disease A related book to read is Knocking on Heaven s Door, which deals with how our medical system tends to keep us all alive longer than we would wish to live Pretty unputdownable train wreck of awfulness, reading about how the author s husband got early onset Alzheimer s and LIVED ANOTHER 20 YEARS and was still alive at publication Which meant he was strong occasionally violent AND unreasonable, and she was unable to keep working or find a satisfactory alternate living situation for him, and then her mom had to go and get dementia too Then there was the estranged stepson who wasn t much help and the revelation that, before she even knew he was go Pretty unputdownable train wreck of awfulness, reading about how the author s husband got early onset Alzheimer s and LIVED ANOTHER 20 YEARS and was still alive at publication Which meant he was strong occasionally violent AND unreasonable, and she was unable to keep working or find a satisfactory alternate living situation for him, and then her mom had to go and get dementia too Then there was the estranged stepson who wasn t much help and the revelation that, before she even knew he was going down the cognitive slope, they had a marital crisis that made him unsympathetic to me.It was helpful in reading this to know that I do NOT have what it takes to be a full time caregiver to someone who never gets better only worse and that I should send in those long term care insurance premiums without grumbling.Hoping the next Alzheimer s book I downloaded will behelpful and hopeful I certainly feel sorry for the author, having had to care for loved ones with the terrible illness of dementia However, as with so many other reviewers, I found myself thinking that it would have been better had her editors helped her with some of the confusing time jumps and general confusion in the writing The husband and the mother, as well as the stepson, and even her own son, seem very flat and unreal Apparently, we are to only feel for the author, as there really isn t much about anyone I certainly feel sorry for the author, having had to care for loved ones with the terrible illness of dementia However, as with so many other reviewers, I found myself thinking that it would have been better had her editors helped her with some of the confusing time jumps and general confusion in the writing The husband and the mother, as well as the stepson, and even her own son, seem very flat and unreal Apparently, we are to only feel for the author, as there really isn t much about anyone else except the occassional mention of their character flaws and inabilities To judge her decisions, or those of anyone in her situation, shouldn t be attempted, as care giving is fraught with challenges that we all second guess I m sure that there are others who would read this book looking for help and guidance, and think how much better they would have had it, had they the money Mrs Comer had at her disposal I am glad that she is attempting to bring dementia related illnessesinto the public eye This is a poignant personal story about being a caregiver for her husband, an eminent medical practitioner and researcher, who developed early onset Alzheimer s in the days before it was fully recognized While detailing her challenges as a caregiver, as life with her husband unfolded and he has lived 19 years, no doubt in part to her role in his care it is interspersed withfacts about Alzheimer s, and herrecent parallel journey as President and CEO of the Geoffrey Beane Foundation This is a poignant personal story about being a caregiver for her husband, an eminent medical practitioner and researcher, who developed early onset Alzheimer s in the days before it was fully recognized While detailing her challenges as a caregiver, as life with her husband unfolded and he has lived 19 years, no doubt in part to her role in his care it is interspersed withfacts about Alzheimer s, and herrecent parallel journey as President and CEO of the Geoffrey Beane Foundation Alzheimer s Initiative Although her circumstances financial,personal and professional areprivileged than many, and allowed her to organize additional caregivers for her husband s care at home and later including her mother in the same as she developed Alzheimer s, the grind and challenges of being a caregiver, to someone who is disappearing as a person, are eloquently portrayed I highly recommend this book This book probably deserves another half star for being so candid and informative, but the pointless last chapter dampened my enthusiasm Having gone through my mother s 8 years of dementia , I am amazed by Comer s massive strength and will, but question her decisions again and again She blames her husband s denial and his doctors for a slow diagnosis, but those strike me as being her own resistance As she relates it, Harvey s dementia whether Alzheimer s or another form is apparent in many This book probably deserves another half star for being so candid and informative, but the pointless last chapter dampened my enthusiasm Having gone through my mother s 8 years of dementia , I am amazed by Comer s massive strength and will, but question her decisions again and again She blames her husband s denial and his doctors for a slow diagnosis, but those strike me as being her own resistance As she relates it, Harvey s dementia whether Alzheimer s or another form is apparent in many ways well before making plans begins So many things could have been done, so many sources of help could have been tapped Ah well, it s a miserable situation and we all end up second guessing ourselves And book editors,who must take some responsibility for repetitions and confusing time jumps Still, I will recommend the book to anyone starting down this dark road The author tells her story bluntly and without guile Her brilliant physician husband developed early onset Alzheimer s she cares for him at home because no placement worked out for various reasons Then her mother developed Alzheimer s joined them in their home I cannot imagine how the author maintained the physical and emotional strength to provide care for them while also starting an Alzheimer s foundation This is an incredible story The author tells her story bluntly and without guile Her brilliant physician husband developed early onset Alzheimer s she cares for him at home because no placement worked out for various reasons Then her mother developed Alzheimer s joined them in their home I cannot imagine how the author maintained the physical and emotional strength to provide care for them while also starting an Alzheimer s foundation This is an incredible story


About the Author: Meryl Comer

Is a well-known author, some of his books are a fascination for readers like in the Slow Dancing with a Stranger: Lost and Found in the Age of Alzheimer's book, this is one of the most wanted Meryl Comer author readers around the world.


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